First eye infusion TOMORROW!
Merry Christmas, updates, and a potential move in 2026.
Seizure struggles, elbow recovery, and finding more daily stability this school year.
Summer updates, upcoming changes, and a whole year of enzyme replacement therapy.
Answered prayers for infusion day! 🥹
Emma's Make-A-Wish trip, infusion side effects, and One Year of knowing CLN2.
Emma's health update, a childcare miracle, our first Batten loss, and a special trip.
A professional change and the beginnings of a new chapter for our family.
Our trip to Nationwide Children's Hospital, improving sleep, and family highlights.
Thank you for prayer & worship, a day in our life, infusions and other prayer requests.
An invitation to join us on 7/28 at CityScape Church.
Emma's first infusion was successful, night of worship on 7/28.
