On Batten Disease Awareness Day, we’re excited to launch The Emma Fund—a charitable initiative dedicated to advancing hope for children and families affected by rare diseases.
First eye infusion TOMORROW!
Merry Christmas, updates, and a potential move in 2026.
Seizure struggles, elbow recovery, and finding more daily stability this school year.
Summer updates, upcoming changes, and a whole year of enzyme replacement therapy.
Answered prayers for infusion day! 🥹
Emma's Make-A-Wish trip, infusion side effects, and One Year of knowing CLN2.
Emma's health update, a childcare miracle, our first Batten loss, and a special trip.
A professional change and the beginnings of a new chapter for our family.
Our trip to Nationwide Children's Hospital, improving sleep, and family highlights.
Thank you for prayer & worship, a day in our life, infusions and other prayer requests.
An invitation to join us on 7/28 at CityScape Church.
